Where can I look for grant information that gives correct info but doesn't cost money?

Question

My 11 year old son has Duchenne Muscular Dystrophy and is confined to a wheelchair. I have a mortgage of $150,000 and have to work to pay it. I am a single parent. I need to know if grants really exist and if I can get help so that I can be at home to care for him. I have been through countless piles of paperwork to try and get financial assistance but have been unable to find anything. Even if I can work part-time or work from home would be beneficial for our family. So far the only grant information I could find cost money. He needs help with every aspect of his life, from going to the bathroom to getting a drink. I have to have help but to have someone come in is going to cost even more money that I don't have. I am currently unemployed due to a recent event but am currently seeking employment. Please understand that it's not that I don't want to or an unable to work. I need to be at home with my son, even if it's only for a few years. Any Suggestions? Thank you.

Answer 1

The Government has created a portal to help individuals who need benefits because of life events. Visit http://www.govbenefits.gov

Use the drop down button
DO YOU NEED BENEFITS BECAUSE OF A LIFE EVENT?
Choose the life situation best applicable to you and then see if you qualify for the available government assistance.

Forget grant money - there's hardly any money for individuals. Go to the Catalog of Federal Domestic Assistance (CFDA) and Grants.gov - these are two sites created by the federal government to provide transparency and information on grants. But you'd be hard pressed to find any grant that would support individuals.

I would suggest you start looking for donations from private citizens. Get help from the media and talk about your son's condition. I remember there was a case of a mother who auctioned on eBay the cancer of her son in order to raise funds for the treatment of the boy. She succeeded in getting media's attention and raised money for the treatment of her son.

Answer 2

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Answer 3

http://www.fastweb.com

Answer 4

Please email me and I will search for resources for you.

Answer 5

Here's some info that you can look through:

Supplemental Security Income
Even if the person with ALS has never worked, he may be entitled to Supplemental Security Income. SSI is a monthly benefit paid to people who are aged, disabled or blind and who have limited income and resources. When applying at your local Social Security office, bring your Social Security number, birth certificate or proof of age, as well as information about your home and your medical care.
People who receive SSI benefits are often eligible for food stamps and Medicaid, too. It’s possible to receive both Social Security Disability benefits and SSI benefits at the same time.
Medicaid
Medicaid, also known as the Medical Assistance Program, is a state government-run program to help cover medical costs of people with low incomes. Individuals with higher incomes may be eligible if their medical expenses exceed a given percentage of their annual income.
Medicaid benefits do vary from state to state, but coverage for long-term care is usually more extensive than that provided by Medicare. It may provide coverage for home care and nursing home care for an unlimited time period, and includes nonmedical as well as medical care.
The catch is that you may not be eligible for Medicaid until nearly all of your personal assets have been depleted by the cost of caring for ALS.
Programs for Medicare Beneficiaries With Low Incomes and Minimal Assets
Each state is required to offer, through its Medicaid program, two programs that provide additional assistance to those who receive Medicare benefits. The Qualified Medicare Beneficiary Program helps individuals whose incomes are at or below the national poverty level. The Specified Low-Income Medicare Beneficiary Program helps individuals whose incomes are slightly higher than the national poverty level. Both programs can help pay some Medicare-related expenses that otherwise might have to come out of the beneficiary’s pocket.
Housing-Related Loans
If you need to make physical adaptations to your home because of a disability, you may be eligible for a Title I Home Improvement Loan insured by the U.S. Department of Housing and Urban Development (HUD). The loan can be used to remove architectural barriers, hazards or inconvenient features in the home.
Tax Benefits
Many medical expenses, from doctor visits to X-rays to home care to the cost of purchasing a wheelchair, may be taken as tax deductions. You must use Form 1040, Schedule A, in order to deduct. Keep in mind, though, that your total medical care expenses must exceed 7.5 percent of your adjusted gross income before you can qualify for federal income tax deductions.
In addition to deductions, people with disabilities may, under certain circumstances, receive a tax credit for child and dependent care expenses (see IRS Publication 503) or qualify for the Credit for the Elderly or Disabled (see IRS Publication 524).

MDA
The Muscular Dystrophy Association (MDA), a voluntary health agency and the world leader in the fight against ALS for over four decades, has invested more than $160 million in ALS research and services.
At MDA’s more than 230 hospital-affiliated clinics and 30 research and clinical centers devoted exclusively to ALS, people with ALS receive diagnosis and follow-up care, including such services as: clinical examination; muscle biopsy; physical, occupational and respiratory therapy referral; and flu inoculation.
In conjunction with this medical care, MDA provides many other direct services, including: assistance with purchase and repair of wheelchairs and leg braces; ALS support groups; and transportation assistance to the nearest MDA clinic. Many local MDA offices also maintain equipment lending programs.
It’s MDA’s policy to assist with payment only for those services authorized in its program that aren’t covered by private or public insurance plans or other community resources.
Speak to the Health Care Services Coordinator at your nearest MDA office for details about the Association’s services. In addition to helping you obtain MDA services and various MDA publications about ALS, the coordinator can provide information and advice on utilizing the various other resources mentioned in this guide.

Drug Assistance Programs
As of Jan. 1, 1997, one drug for ALS had received government approval and several others were under development. Your doctor or the Health Care Services Coordinator at your local MDA office should have information on programs that assist consumers with the financial burden of purchasing drugs for ALS, as well as information on early access programs for drugs that haven’t yet been approved for general use.
Since 1987, the National Organization for Rare Disorders (NORD) has been helping financially needy individuals obtain necessary prescription drugs through the medication assistance programs it administers in conjunction with pharmaceutical companies. NORD also administers early access programs for yet-to-be approved drugs. Follow the link to contact NORD.

Family and Medical Leave
If you’re holding down a job in addition to your caregiving duties, or if the person you’re caring for who has ALS has a job, you should be aware that, under the Family and Medical Leave Act of 1993, an individual may be entitled to take up to 12 weeks of unpaid leave without fear of losing his or her job. Both the person with ALS and a family member who takes care of him may be able to take time off from work under this law.
In some cases, the employee who is taking leave must provide 30 days advance notice when the leave is foreseeable, and an employer may require medical certification to support a request for leave due to a serious health condition.
Look in your telephone book for the nearest office of the Wage and Hour Division, usually listed under U.S. Government, Department of Labor, Employee Standards Administration, to obtain more information on the Family and Medical Leave Act.

Veterans
If your loved one with ALS is a military veteran, he should apply to the nearest Department of Veteran Affairs to find out about programs available to veterans with disabilities.

Other Programs
In each state, the following programs are available: Vocational Rehabilitation Program, which assists eligible people with disabilities to achieve suitable employment; Supported Employment Program, which works with individuals with severe disabilities who require ongoing support services to enter or maintain competitive employment; and Independent Living Centers, which focus on working with people with disabilities to enable them to live independently in the community and at home. Ask your local MDA office for information about these programs.
If you think you may require legal help, you should be aware of the Protection & Advocacy System (P&A) and the Client Assistance Program (CAP), which are mandated by the federal government to help protect the rights of people with disabilities. P&A and CAP services vary from state to state, so you’ll want to ask your MDA Health Care Services Coordinator about these programs and how you can contact the nearest P&A or CAP office.