Does my severely handicapped/chronically ill child HAVE 2 attend school,last LPN was fired 4 unprof. conduct!?

Question

the last/only LPN my child had,did things that were unspeakable,the school district didn't even file a formal/legal complaint against her licensure-and they know that I don't have the energy 2 fight-so I am NOT sending him back 2 school this year. He has a trach & a g-tube & is 200%dependant-educational goals aren't ever feasable-and even the director said numerous times through kindergarten & the first few months of 1st grade that in the 10/15 minutes on the days I stopped by I got more communication, smiles, and direct intelligent interaction out of him than they were lucky 2 get in a week!!! My sons' brain shows extremely high upper cognitive activity, but the translator 2 his body is toast-he's trapped inside,but he CHOOSES 2 only communicate with me-i used 2 care that he got un stubborn-but @ what cost? now my mother is telling me I have 2 send him or they'll 'investigate me"! RN's & 'homes' can't even keep him as happy/healthy as I do @ home,¬ just cold stuff-basic care stuff

*from what I've researched, becuase she was employed by the school district&THEY completed the investigation...THEY have to report it..yes,I've told them this.I am the strongest advocate his physiatrist has met in her 25+years in practice, but I didn't know legalities in this area..and adding to the 'homes' refrence, I TRIED one for respite...I've been a single mom his whole life...good god!It was supposed to b the best..they clipped the ends of his fingers off (7 out of 10)clipping his nails...MORONS..i've never made him bleed...there's just not enough attempts to keep our children with us...in the end my state would rather fork over all its $ to see us give them to homes....

Answer 1

I also recommend home schooling... there is no law that states that your child HAS to attend public school, just that it is mandated as an option. If you strongly feel that your child would be better off with you at home, then take it upon yourself to teach him. I work for a preschool for children with disabilities, and we have had some children with limitations as severe as your son. I have to say, that I find that physical handicaps do not have any bearing on cognitive activity, and if you are the person getting responses from your son, then perhaps you are the person who should be teaching him. I know what you mean about the educational goals... they tend to set the child up for failure (aside from being written by someone who does not know your child- at all!) Unfortunately for your son, there are lots of people out there who do not have his best interests at heart, and these sound like the people you are dealing with. They pass off lack of interactions and activity as too difficult to deal with... basically give up on your child. These are not the people you need caring for your son. If you can not find anyone that you feel would treat your child the way you do, and love him unconditionally, then you will want to step in yourself. Enroll your son in a home-schooling course (for which you will accountable for making sure you are meeting his goals) and call an IEP to discuss the changes you want. You have to fight for your son... he can't do it himself, so you have to be his advocate. Good luck!

Answer 2

IDEA (The Special Ed law) provides for "free and appropriate public education". For your child, this may be schooling at home. The school would send in the educators and therapists. It is possible that your child would feel more comfortable at home. It's tough to attend school when you have so many medical as well as cognitive issues to deal with. Check with your Director of Special Education and if you do not get answers, go directly to your state's Department of Education.

Answer 3

Look into homebound education. Your child has rights under IDEA and is entitled to an education, even if is isn't an academic one. With homebound education, a teacher (certified special education teacher - DEMAND that one comes, not just a teacher who is willing to do it) will come to your house for a specific number of hours per week/month and work on IEP goals for your child. Since your son will be a home, the teacher can work on communication, daily living, etc. Academic goals DON'T have to be addressed.

The main thing is to keep your son in the "system" - as time goes on, he will be entitled to more and more as he gets older.

Answer 4

I would check to see if your state provides for homebound schooling. I live in Texas. If a child in this state is too ill, fragile, or etc. to attend school, the school district must provide an education for the child in his/her home. That means that the teacher comes to your home to provide services to your child. I would check to see if the laws are the same in your state. If the law is the same in your state, then you can be present and help facilitate your son's education.

Answer 5

Think about home schooling your child, until another LPN is available at the school.

Answer 6

report the nurse to the state board of nursing. then commence home schooling. if you can't do it help is available.