for people with endimetriosis...what was your first indication of symptoms and how were you diagnosed?

Question

ive not had sex before. dizzyness was a major factor of my inability to deal with the experience in a day to day way

Answer 1

i had lots of abdominal and lower back pain, irregular periods and I couldnt get pregnant. The only true way to know if you have endometriosis is surgery, they go thru your gbelly button with a camera, any endometrial tissue they see they laser off. Also i am on birth control so i dont have a period and that helps slow the growth of the endomitrial tissue

Answer 2

I've had endometriosis for 10 years. I've had 2 surgeries, been on birth control pill and shot, and am about to go through chemical menopause to treat it. My first indications were horrible pain (brought me to the floor) during my period and when I was ovulating. I was brought to the emergency room a few times when I had my period and was told it was the wrong time of the month for a cyst to burst. Your doctor can tell you that you have the symptoms of it, but can't diagnose it unless he does surgery. He can laser it out (which leaves scar tissue), do old fashioned surgery and cut it out or there is a new surgery where they are using sonar waves to get rid of it. I've had the first 2. My last surgery was 2 months ago. The only "cures" for endometriosis are pregnancy, menopause and hysterectomy. So it will continue to come back until one of these three things happen. The birth control pill or shot will sometimes help with the pain, and could give you some relief with the pain. But surgery and medication is the best way to treat it. One without the other is not good. It will continue to come back. The best things I have found to help with the pain are, pain medication, heating pads, and the heat patch (you can buy it at WalMart in the aisle with the tampons and pads). You also might experience pain during sex. If you think you have it, get to your doctor. If you are in the Rochester, NY area I can refer you to a specialist. GET IT TREATED!!!! Endometriosis can also cause other things to happen to you. For example, I now have intersitital cystitis (a problem with my bladder) and one of the causes is endometriosis. So get it treated, don't mess around with the pain, talk to you doctor!

Answer 3

At 13 I had let my pains and horrible periods go not thinking anything about them. when I went to my gynocologists he kept diagnosing me with a pid. Which was not the case. at 16 I hurt so bad that I could not move, i was crying with pain, when I tried to stand up i would fall down from pain and dizzyness. and so I went to the hospital and they ran everything they could think of. Then they ask had we had a history of endo. in our family and a sonogram was done. it showed nothing. They only way we found out that i had endo. was by having a surgery. The scars are not noticeable. If I would take my birthcontrol it might stay dormant, but they swell me up like a good year blimp and i dont like it so i deal with the messed up periods. I had the endo, and tumors and systs removed.

Answer 4

Especially painful periods.

It is diagnosed differentially---by looking at various items and making a probalistic diagnosis.

Sometimes, indications can be seen with lapriscopy---making a slit and inserting a fiber-optic to view things. But in my wife's case, nothing could be found.

Birth control pills provide relief.

Danacrin provides relief. (However, Danacrin having properties of a male steroid, makes the breasts go saggy---but they recover when drug is stopped.)

Ultimately, my wife had her overies removed (age 42)--no more problem. It probably was endimetriosis she had.

Answer 5

i suffered w/extreme pain in my left, lower abdomen for 9 mos. i saw a doctor @ IU bloomington, since i was a college student. The doctor just thought i had PID and treated me w/antibiotics. I had no idea what that was and later found out it was related to STD and I was a virgin--so I knew I was misdiagnosed. Finally I doubled over w/pain and an ultrasound revealed a huge mass on my left ovary. Three days later, I was in surgery and had my ovary and tube taken out. i'm still sad that i suffered needlessly---pain and intermittent bleeding were my symptoms.

Answer 6

71 to 87% of women studied with chronic pelvic pain were found to have endometriosis. Scar tissue buildup is thought to be a cause of chronic pelvic pain.

A woman may experience other symptoms including painful menstruation and pain during sexual intercourse.

Among infertile women, about 30 to 45% have endometriosis

Answer 7

My friend had it - her first clue was pain during sex, it felt like it wouldn't "fit". She went to see an ob/gyn and they diagnosed it. The sooner the better, or it can have serious long-term effects.