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I heard a bit of info.on the news about this and it can not be found
through a mammogram. Does anyone know more about details?

2006-07-14 16:28:44 · 7 answers · asked by Linda R 6 in Health Women's Health

7 answers

New kind of Breast Cancer -
Please forward to all of the women in your lives -- Mothers, daughters, sisters, aunts, friends, etc.
In November, a rare kind of breast cancer was found. A lady developed a rash on her breast, similar to that of young mothers who are nursing.
Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After 2 rounds, it continued to get worse, so her doctor sent her for another mammogram. This time it showed a mass.
A biopsy found a fast growing malignancy. Chemo was started in order to shrink the growth; then a mastectomy was performed; then a full round of Chemo; then radiation. After about 9 months of intense treatment, she was given a clean bill of health.
She had one year of living each day to its fullest! Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo. She had 5 great months and she planned each detail of the final days. After a few days of needing morphine, she died. She left this message to be delivered to women everywhere.

Women, PLEASE be alert to anything that is not normal, and be persistent in getting help as soon as possible.
Paget's Disease: This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureole. It appeared as a rash, which later became a lesion with a crusty outer edge. I would not have ever suspected it to be breast cancer but it was. My nipple never seemed any different to me, but the rash bothered me, so I went to the doctor for that. Sometimes, it itched and was sore, but other than that it didn't bother me. It was just ugly and a nuisance, and could not be cleared up with all the creams prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak.

They seemed a little concerned but did not warn me it could be cancerous. Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be breast cancer. Mine started out as a single red pimple on the aureole.

One of the biggest problems with Paget's disease of the nipple is that the symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care. What are the symptoms?

1. A persistent redness, oozing, and crusting of your nipple causing it to itch and burn. (As I stated, mine did not itch or burn much, and had no oozing I was aware of, but it did have a crust along the outer edge on one side.)

2. A sore on your nipple that will not heal. (Mine was on the aureole area with a whitish thick looking area in center of nipple).

3. Usually only one nipple is effected. How is it diagnosed? Your doctor will do a physical exam and should suggest having a mammogram of both breasts, done immediately. Even though the redness, oozing and crusting closely resemble dermatitis (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should order a biopsy of your sore to confirm what is going on.

This message should be taken seriously and passed on to as many of your relatives and friends as possible; it could save someone's life.

My breast cancer has spread and metastasized to my bones after receiving mega doses of chemotherapy, 28 treatments of radiation and taking Tamaxofin. If this had been diagnosed as breast cancer in the beginning, perhaps it would not have spread...

TO ALL READERS:
This is sad as women are not aware of Paget's disease. If, by passing this around on the e-mail, we can make others aware of it and its potential danger, we are helping women everywhere.

2006-07-14 16:33:53 · answer #1 · answered by Jennifer B 5 · 0 1

1

2016-12-24 03:58:04 · answer #2 · answered by Anonymous · 0 0

Inflammatory Breast is a relatively rare form of breast cancer (about 1-4%), which has the worst prognosis of all breast cancers. IBC/RPBC is fast-growing and blocks the lymph vessels in the breast and skin. Swollen lymph nodes may appear under the arm or above the collarbone Age, Pregnancy or Sex is no barrier. The very young have been diagnosed with IBC/RPBC. Men can have IBC/RPBC. Pregnant or Lactating Women have developed IBC/RPBC.

For your peace of mind, insist on a complete workup to rule out the more common benign problems. But very frequently, IBC/RPBC is not diagnosed immediately because it is rare. Many doctors and health professionals do not know about IBC/RPBC. A good suggestion is to be seen at your nearest teaching hospital.

Symptoms may include any of the following:

A warm swollen red breast, giving the appearance of an infection or inflammation.
The breast may appear dimpled and bumpy, like an orange (peau d'orange).
The breast does not change through the menstrual cycle or respond to antibiotics
Many times IBC/RPBC is mistaken for Mastitis.
Women have developed IBC/RPBC while nursing.
Some have thought the redness was because of their implants.
Another red flag is when a course of antibiotics does not produce significant results.
The sudden appearance of a large lump in the breast. Women/Men have reported going to bed with nothing and waking up with a 9cm lump. This sudden onset can be ascribed to a phenomenon similar to an ice cube or ice berg. One only sees the very top of the ice and not its true size.
Some have spoken of seeing something like a small "flea bite" which grew larger and larger. Don't forget: breast tumors grow on a bell curve.
Itching with or without visible skin changes.
The nipple can become flattened or inverted. Occasionally there may be discharge.
There may pain in the breast. Do not be fooled by this widespread myth, "if there's pain, there can't be cancer."
Many times IBC/RPBC will not show upon a mammogram.
What is most important is that you start treatment right away

2006-07-14 16:36:55 · answer #3 · answered by purple 6 · 0 0

I had the test for IBC. I currently have cancer of the thyroid, I developed lumps in the breast. AFTER having the lumps removed, I developed the same symptoms of IBC. I had an extremely high fever. My breast became extremely hot to the touch, and was bright red. The redness went down my whole body, and I was in the hospital for 10 days on IV fluids. The breast become tough and feel like an "orange." The pain was extreme. My breast felt like the consistency of mash potatoes, or something. I can't really explain it.

Thank GOD!!!!! I did not have IBC!!! This type of cancer is one of the most aggressive forms of breast cancer out there. My symptoms just mimic this disease. Rather I had breast cellulitis. Because it responded to the IV antibiodic, that meant I did not have the cancer.

It does not show up in a mammogram, because there is no specific tumor that can be found. It is not round like a tumor. Its feathery.. or something to this extent from what I was told, by the doctors. I hope I have helped just a bit.

2006-07-14 16:36:58 · answer #4 · answered by barbaradjt 5 · 0 0

In fact I just saw a video about that today! This kind of cancer is hard to find info on. It starts looking like a bug bite and itching..redness in the area, swelling; a mis-shapen look to the breast and an inverted nipple. I read where a 16 year old girl died from it because she was too embarrassed to tell her mom that her breast "Looked funny". Think it's a bug bite? maybe not...get it checked. It's also very deadly, and a lot of doctors mis-diagnose because it doesn't get the press that the other kinds of breast cancer do.

2006-07-14 16:35:29 · answer #5 · answered by brain is frozen 2 · 0 0

Inflammatory carcinoma of the breast is the main malignant of all. The tumor is becoming so without postpone it simulates and inflammatory challenge. I spreads without postpone and diagnosis is undesirable.

2016-11-02 02:17:11 · answer #6 · answered by ? 4 · 0 0

Don't worry.

You are just developing some bodacious tata's.

You are a woman now.

Call me.

2006-07-14 16:32:01 · answer #7 · answered by Anonymous · 0 0

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